Navigation
Useful Links:
1. Clinical Guidance
Canadian and NICE clinical guidance documents (for more details see our home page) download the NICE clinical guidelines here
Assessment and Treatment of Depression and Anxiety in patients with ME/CFS:
A Psychiatric Perspective (15 pages) Eleanor Stein, MD, FRCP(C), 2005
is available at
http://www.mefmaction.net/Portals/0/docs//psychiatricguidelinesstein.pdf
ME/CFS Management Guidelines for GPs Government of Southern Australia, 2004
www.sacfs.asn.au/medical/pdf/guidelines.pdf
ME/CFS/PVFS – An exploration of key clinical issues 2007 Dr Charles Shepherd MBBS Medical Advisor, The ME Association with Dr Abhijit Chaudhuri DM MD MRCP Clinical Senior Lecturer in Neurology is available at: http://www.meassociation.org.uk/content/view/188/115/ (download pdf order form, cost £4.)
Guidance on the Management of CFS/M.E. is available from Action for ME.
www.afme.org.uk/res/img/resources/Doctors%20Guide%20July%202005.pdf
and
www.afme.org.uk/hp_infocentre.asp
2. Reports
ME Diagnosis: Delay Harms Health (2005)
Early Diagnosis: why is it so important. A report from the ME Alliance
www.afme.org.uk/res/img/resources/ME%20Diagnosis%20Report%20master.pdf
Report to the Chief Medical Officer of an Independent Working Group into CFS/ME (2002)
http://www.dh.gov.uk/assetRoot/04/05/95/06/04059506.pdf
Severely Neglected: M.E. in the UK (2001)
A report examining the experiences of severely ill people in accessing health and social care
www.afme.org.uk/res/img/resources/Severely%20Neglected.pdf
ME in Children
A superb range of reports and guidance leaflets are available free to download from The Tymes Trust. Go to their home page, then click on ‘publications’.
3. Guidance for patients and carers
Guidance on Pacing
http://www.wames.org.uk/ffram.htm
www.afme.org.uk/res/img/resources/Pacing%20booklet.pdf
http://freespace.virgin.net/david.axford/pacing.htm
ME Association Leaflets
The MEA produce a wide range of information leaflets – download their order form here
All about M.E. - an introduction
www.afme.org.uk/res/img/resources/All%20about%20ME.pdf
Your child and M.E. For parents and families of under 18s with M.E.
www.afme.org.uk/res/img/resources/Parents%20booklet.pdf
4. Local Organisations
5. National Organisations
The ME Association www.meassociation.org.uk
The Young ME Sufferers Trust www.tymestrust.org
Action for ME www.afme.org.uk
Action for Young People with ME www.ayme.org.uk
The 25% Group, representing the severely affected www.25megroup.org
InvestinME, campaigning for biomedical research into ME www.investinme.org
ME Research UK, energising ME research www.meresearch.org.uk
CFS Research Foundation www.cfsrf.com
6. International Organisations
Cooperate and Communicate for a Cure, includes comprehensive listings archive and extensive lists of links
www.co-cure.org
Canadian ME/FMS support organisation
www.mefmaction.net
International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis
http://www.iacfsme.org/
CFIDS Association of America
www.cfids.org
Immune Support, world's largest Fibromyalgia and Chronic Fatigue Syndrome site
www.immunesupport.com
CFIDS and Fibromyalgia Self Help
www.cfidsselfhelp.org
ME/CFS Literature Archive
http://freespace.virgin.net/david.axford/melist.htm
7. Internet Discussion/Chat/Support groups
www.mecfsparents.org.uk for parents / parents-to-be
http://health.groups.yahoo.com/group/CFS-Care/ for carers
8. Benefits Information/Advice
The Disability Rights Commission
www.drc-gb.org
The Solicitors Room
In association with the Disability Alliance, a panel of solicitors has set up a website to provide disabled people with access to legal advice. A secure file will be set up for each client.
www.thesolicitorsroom.com